The 2026 Toronto International Film Festival (TIFF) kicked off with a powerful statement on disability rights, as Sian Heder‘s Being Heumann took center stage at Roy Thomson Hall. The film, starring Ruth Madeley tells the story of Judy Heumann a pivotal figure in the disability rights movement. Heder, known for her Oscar-winning film CODA emphasized the film’s relevance in today’s political climate, where many groups feel left behind.
The opening night also saw Toronto Mayor Olivia Chow in attendance, subtly addressing the ongoing trade tensions between the U.S. and Canada. Chow’s remarks about Lake Ontario, in response to recent political maneuvers by U.S. President Donald Trump added a layer of geopolitical context to the festival’s commencement.
The Story Behind Being Heumann
Being Heumann opens with a poignant scene in New York City, highlighting the lack of curb cuts—a seemingly small detail that significantly impacts the lives of those with disabilities. The film follows Heumann’s journey as she leads a historic 1977 protest that catalyzed the disability-rights revolution in the U.S., ultimately leading to the Americans With Disabilities Act. Heder’s decision to focus on this story was driven by a deep personal connection and a desire to tell a challenging yet essential narrative.
Heder first encountered Heumann through the documentary Crip Camp where she was struck by Heumann’s charisma and determination. ‘There’s a scene where she’s yelling about lasagna in the cafeteria at summer camp, and I was like, “Who is this woman?”’ Heder recalled. This encounter sparked a five-year journey to bring Heumann’s story to the big screen, culminating in a film that Heder hopes will inspire collective action and visibility for the disability community.
A Film of Collective Action and Visibility
The premiere of Being Heumann was not just a celebration of cinema but also a testament to the power of collective action. Heder brought her all-disabled cast onto the stage for a post-premiere Q&A, emphasizing the importance of representation both on and off the screen. Madeley, who plays Heumann, expressed her gratitude for the opportunity to bring such a significant story to life.
The film’s premiere also marked a shift in how TIFF approaches accessibility. The event featured open captions and a barrier-free venue, reflecting the film’s themes and the festival’s commitment to inclusivity. Heder’s remarks about the film’s relevance in today’s political climate resonated with the audience, as she highlighted the ongoing struggles for rights and visibility.
As the festival continues through September 20, Being Heumann sets a compelling tone, encouraging attendees and viewers alike to reflect on the power of collective action and the importance of making the invisible visible.
